Building a Smarter Endometriosis Strategy — Together
Global prevalence of endometriosis ranges from 114–247 million women, yet diagnosis takes an average of 4 to 12 years, driving excess costs and needless pain.
✔ 70% of patients live with unresolved pain
✔ 47% of endometriosis patients had seen at least five doctors before getting an endometriosis diagnosis or referral
✔ US indirect and direct medical costs are 5 times higher than for peers.
✔ Despite a prevalence greater than diabetes,2 and a cost of illness burden of over 9.5 billion AUD per year
✔ 37% face infertility — 3x higher than women without endo.
Bottom line: Fragmented care costs us all — emotionally and economically.
The Endometriosis Pulse Brief is Fempower Health’s first step to map the endometriosis landscape, identify gaps, and spark collaboration to improve diagnosis, treatment, and patient outcomes.
Sources on bottom of page
Why Endometriosis Remains So Fragmented
WHAT YOU NEED TO KNOW
Women with endometriosis spend years seeking a diagnosis — often misdiagnosed multiple times. The patient journey is inconsistent, experts often disagree on best practices, and trusted endometriosis resources can be hard to find.
Meanwhile, researchers, startups, clinicians, and advocacy groups are all working to improve endometriosis care — but they’re building alone. The result? Duplicated efforts, wasted funding, and slow progress for patients who need answers now.
What We’re Building As a First Step — The Endometriosis Pulse Brief
The Endometriosis Pulse Brief is a strategic snapshot of:
✔ Who’s working on endometriosis research, innovation, policy, and care — by segment, not individual names.
✔ The top systemic barriers slowing progress — so everyone can see common pain points.
✔ Broad themes for collaboration — areas people agree could unlock faster diagnosis and better treatment.
By gathering these endometriosis insights centrally, we can work smarter — like other successful coalitions that have transformed complex diseases such as breast cancer.
Why Your Voice Matters
Everyone who contributes will receive the Endometriosis Pulse Brief — a clear, actionable look at the state of endometriosis research, care, and innovation.
But this is just the beginning. Insights from this brief will guide:
✔ Strategic working groups to align key stakeholders
✔ Opportunities for shared tools and resources (like biobanks and patient registries)
✔ Collaboration on future products or solutions to help women get diagnosed and treated faster
Who Should Complete the Endometriosis Landscape Survey
WE WANT TO HEAR FROM YOU
This initiative is for anyone actively working on endometriosis:
✔ Clinicians, surgeons, and researchers
✔ Women’s health innovators and diagnostics founders
✔ Biopharma teams, data and policy leaders
✔ Advocates, nonprofits, and educators
✔ Funders, VCs, and health systems partners
If you want to see endometriosis diagnosis and treatment pathways improve, your input will help shape what happens next.
Next Steps — Take the Survey & Stay Involved
JOIN US
Fill out the survey — it takes 5 minutes to share who you are, what you’re working on, and what you need to move faster.
✔ Receive the Endometriosis Pulse Brief this summer — you’ll get a free, high-level snapshot of who is working in endometriosis, the top barriers slowing progress, and where collaboration could make the biggest difference.
✔ Stay part of the Working Group — your input will help shape deeper strategy sessions, shared solutions, and possible future tools or products to improve diagnosis and treatment for women everywhere.
Interested in deeper access, sponsorship, or co-creating the next phase? Email us.
Dive Deeper into our Strategy
We believe transparency drives smarter collaboration. Sign up below to view our draft slides outlining the Endometriosis Working Group strategy - and get updates as this evolves.
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Sources: WHO, Rahmioglu, N., & Zondervan, K. T. (2024). Endometriosis: disease mechanisms and health disparities. Bulletin of the World Health Organization, BLT.24.292660. Advance online publication. https://doi.org/10.2471/BLT.24.292660, Ellis, K., Munro, D., & Clarke, J. (2022). Endometriosis Is Undervalued: A Call to Action. Frontiers in global women's health, 3, 902371. https://doi.org/10.3389/fgwh.2022.902371, Soliman, A.M., Surrey, E., Bonafede, M. et al. Real-World Evaluation of Direct and Indirect Economic Burden Among Endometriosis Patients in the United States. Adv Ther 35, 408–423 (2018). https://doi.org/10.1007/s12325-018-0667-3, ASRM Practice Committee. “Endometriosis and Infertility.” Fertility and Sterility, 2012 (updated 2017), Armour M, Ciccia D, Yazdani A, Rombauts L, Van Niekerk L, Schubert R, Abbott J. Endometriosis research priorities in Australia. Aust N Z J Obstet Gynaecol. 2023. doi:10.1111/ajo.13699